Topic: Health

Whānau launches campaign to raise awareness on genetic disorder

By Dean Nathan
  • Northland

At 10 years of age, Drew Perham started feeling the painful symptoms of a genetic disorder. That is why her family has launched a campaign to promote awareness of a condition known as Neurofibromatosis.

Perham is the star of a video clip that was uploaded by her whānau to YouTube to raise awareness on Neurofibromatosis. The clip has circulated online, capturing the hearts of many.

Robert Perham, “She's a lot stronger than I am, you know kids are a lot more resilient than their parents and she takes it on  the chin and want to go to McDonald's and wants to play just like any other kid would.”

On most days, Drew is usually bursting with energy, however there are days when she has to deal with the symptoms like the growth of tumours on her nervous system.

Nana Catchy says, “Medication doesn't fix it.  So nana has to allow more time to mirimiri and just a lot of hugs a lot of love.”

Neurofibromatosis is a condition that affects one in 3000 people.  In the rural community of Panguru, the people have united to promote awareness on the disorder and find a cure to save their child.

It is hoped that her video will promote more awareness.